Long Covid is the name used when symptoms from a Covid infection last longer than 12 weeks and can’t be explained by anything else. These symptoms can come and go, change over time, and affect different parts of your body. You don’t need to have been seriously ill with Covid to get Long Covid.
Common symptoms include feeling tired all the time (fatigue), trouble thinking clearly (often called brain fog), pain in different parts of the body, poor sleep that doesn’t feel restful, feeling out of breath when doing things. Some people may also have an upset tummy, sore throat or ears, fast heartbeat, changes in mood, or skin problems.
Fatigue is the most common symptom people get with Long Covid. It’s not the same as normal tiredness and doesn’t improve with sleep. It can feel like a heavy, overwhelming exhaustion that seems worse than the activity you’ve done.
There are two main types of fatigue:
Physical Fatigue – You might feel very tired, heavy, or drained. Even small tasks like getting dressed or walking a short distance can take a lot of energy.
Mental Fatigue– This affects how your brain works. It might be hard to focus, think clearly, remember things, or find the right words. Learning or processing new information can also feel difficult.
Fatigue in Long Covid is complex because it involves many systems in the body that help make, use, and manage energy. Normally, your body systems work together, and your brain helps keep everything in balance. But when they are under too much stress or pressure, they can get “dysregulated,” which means they stop working properly. This can lead to low energy and ongoing tiredness.
Long Covid fatigue may be caused by a mix of the virus itself and how your immune system reacts to it. Some of the ways people manage ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) can also be helpful for managing Long Covid fatigue, since both conditions share many of the same symptoms.
What to expect following referral to the Long Covid Fatigue service:
You can choose where your appointment takes place — either in person at a local venue or over the phone. You’re welcome to come alone or bring a friend or family member. The appointment will last about 45 minutes. During this first appointment, we’ll ask you questions about your fatigue symptoms and how they affect your life.
After your assessment, we may offer more support. We offer both individual sessions and group programmes to help you manage fatigue from Long Covid.
The Long Covid Fatigue Group Programme:
The group programme is a great option for people who want to learn how to manage fatigue while connecting with others who are going through the same thing. The focus is on learning and practising strategies to help lessen the impact of fatigue in your life. It’s a friendly and supportive space.
The group is led by two members of our team, and there are usually around 20 people in each group. Each session lasts 2.5 hours, and the programme runs for 6 weeks.After finishing the group, you can also join refresher sessions to keep practising and improving your skills.
Individual Sessions:
Individual sessions last about 30 minutes and are usually with the clinician who assessed you. During these sessions, we talk about topics like understanding fatigue, managing activities, taking quality rest, physical activity, the emotional impact of fatigue, sleep, and nutrition.
We typically offer 3 to 6 individual sessions, which can be face-to-face, by phone, or via video call. If the options above don’t suit you, we can offer an open appointment. This means you can contact us in the future if you need further support.
Yes! People tell us they feel heard and understood in our service. They have found it useful to connect with others in a group setting and share their experiences. People comment they understand fatigue more fully and are benefitting from implementing skills and techniques gradually and sustainably .
No. We love to see you, (and your pets)! but joining the group doesn’t mean you need to have your camera on throughout. We appreciate breaks are needed. We’ll check in with you during sessions and always have a decent break in the group.
The groups are confidential, and we need to protect the confidentiality of everyone on the sessions so its important that you are alone on the virtual group. Its also important that you have a quiet space, where you will not be disturbed and have protected some time for yourself to fully engage with sessions.
This is very common with fatigue. We have a manual you can follow and use as a reminder between sessions, and also share with the people around who support you.
Individual sessions are tailored to fit your needs. We usually offer between 3-6 sessions of around 30mins each. These can be in person, telephone or virtual depending on your preference. We will agree together what is most important for you, and you will have a manual to support these sessions. There will usually be some time between sessions for you to implement skills and practice.
Following completion of a group or individual sessions we will invite you to group refresher sessions. These are run virtually, last 90mins and run quarterly throughout the year. There can be quite a lot of people on these sessions (we have had up to 40). They are an opportunity check in with yourself, connect with others, and refresh knowledge, skills and techniques learned on the sessions.
You also have an open appointment with the service and can contact us by phone or email for individual support for 12 months.
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